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13 Jan 2022
Indiana Alliance is excited to share we have added Rebecca’s Spotlight to our website. We want to create a space where individuals living with an FASD can share their stories. This space is called Rebecca’s Spotlight to honor self-advocate Rebecca Tillou and her work to give other self-advocates voice. If you’re inspired to share YOUR story, let us know!
504 Plan and IEP: Keys to Jenn’s Success!
Hi! My name is Jenn. I found out about my FASD at 17 while at a residential treatment facility. I was tested at the University of Minnesota & was diagnosed with alcohol-related neurodevelopmental disorder (ARND)
I had trouble focusing and understanding certain concepts at school. Fortunately my parents were able to get me a 504 plan & then an Individualized Education Program (IEP) once I got to middle school. It’s helped me immensely. I feel that’s the only way I was able to graduate from high school & my college program.
My strengths are that I am extremely friendly & creative and empathetic.
“I truly feel those of us on the spectrum can be extremely gifted! Find what you are good at & what you are passionate about- run with that! Don’t worry about fitting in- stand out and use your strengths to shine! I often find we focus too much on what we aren’t good at vs. what wonderful gifts we do have to offer. For all the negative aspects of our disability there are some positives as well!” – Jenn
More about Rebecca Tilou
Rebecca hopes to spread her knowledge of what it is like to be diagnosed as an adult with FASD – which is often called an “invisible disability.” Read more about her own journey of self discovery here and watch a video she created for others here. Rebeccas has also written a book called “Tenacity” about her struggles to understand not just her biological roots but herself.
